Today is International Day of Disabled People and to mark
this, NUS have launched “Coming Out as Disabled” a campaign in which they
encourage people to write articles about their disabilities and experiences.
RUSU has collected several blogs from Reading students who wanted to share
their stories. We hope that starting these conversations on our campus will
encourage all students to talk more openly about disability and most
importantly remind disabled students that they are not alone.
Thank you so much to the students who wrote to us and
supported this cause, we hope you found it to be a positive experience.
Sophie Davies, RUSU Welfare Officer and Ellie Brady, RUSU Disabled Students Part-time Officer.
I
was diagnosed with a rare bone marrow cancer, “Essential Thrombocythaemia”, one
week before my first term of university. With my new diagnosis and being thrown
into a completely new environment simultaneously, university had the potential
to be very scary!
I
was terrified of explaining my diagnosis to my new flatmates; worried that I’d
be known as “the sick girl” and nothing more, with cancer becoming my identity.
I tried to hide my symptoms as much as possible and didn’t begin treatment
until December that year so side effects were thankfully minimal.
Then one day
the cat got out of the bag… My cancer causes blood clots which can cause
temporary blindness if a clot is passing behind my eye. I was getting ready for
another night out in town with my flatmates when BAM, I went blind in
my left eye, I then was faced with the very daunting task of explaining my
“situation” to my new friends.I
couldn't bring myself to explain my condition all at once, so merely said I had
a blood condition which sometimes, on the odd occasion, caused blindness. They
respected my wish; that I didn’t want to talk about it, and we stayed in that
night instead, chatting to the early hours of the morning.
In December
when I was told by my consultant I would have to start daily chemotherapy pills
that would make me very sick, I realised I had to talk to my flat properly. My
parents dropped me back at halls from the hospital and I said goodbye with
tears in my eyes as I dreaded what my flat would think of me; a disease ridden
girl, a burden. That night I called a flat meeting, all 10 of us squeezed into
my bedroom, all sat silently listening to my “story”. I told them in much
greater detail than I had anyone before about my diagnosis, prognosis and
treatment. I remember the looks on their faces and I am proud to say none of
them were of pity. When I finished most were a little teary but not with
sadness, they were proud of me and happy I felt comfortable enough with them to
talk to them about it. My flat then did something absolutely incredible; they
made jokes! They made me laugh! They treated me no differently and carried on
as if normal whilst assuring me they would all be there if or when I needed
them.
I
am very blessed with the group of friends I made at university. Now I don’t shy
away from explaining I have a life-long cancer, but wear it as a badge of
honour. My friends at university have been the best support network I could
have asked for; supporting me when I need them but always keeping me smiling,
happy and optimistic.